Disabled New Yorkers and incapacity advocates spoke out towards a Metropolis Council invoice that will ban 24-hour dwelling care shifts, saying their very own care will undergo.
The invoice, which was stalled within the Council, would exchange the 24-hour shifts with 12-hour shifts carried out by two separate employees.
However those that depend on the help of dwelling well being aides say the proposed change — which has sturdy help from advocates for dwelling well being aides — would uproot their lives.
The “No Extra 24” invoice has turned allies into opponents, pitting employees’ rights activists towards incapacity advocates and those that want round the clock care. Each Gov. Kathy Hochul and Council Speaker Julie Menin reportedly nonetheless have questions on funding.
Beneath the present dwelling care system, well being aides are required to spend 24 hours with a consumer even when they’re paid for less than 13 hours. Present guidelines enable for relaxation and meal breaks, however members of the largely immigrant workforce say they’re typically exploited and compelled to work across the clock.

The house care system is funded by way of the state, which has not budgeted for the rise in spending that will come from two 12-hour shifts by two absolutely paid employees.
Jose Hernandez, a wheelchair person who has had dwelling care aides for 31 years, interrupted Tuesday’s Council oversight listening to to talk out towards the invoice, saying he and others have been being ignored.
“It scares me, as somebody that was threatened to be positioned in a nursing dwelling once I was 16,” he mentioned after he left the listening to. He receives around-the-clock care with dwelling well being aides like Bakary Sawo, who got here with him to Tuesday’s listening to.
“I don’t need the those who appear like me, that want dwelling care like me, to be positioned in establishments as a result of [the city doesn’t] need to discover a resolution and do the exhausting work and work along with the incapacity neighborhood and the house care employees to make sure that a invoice that helps each employee and affected person is discovered.”
Hernandez and others urged Councilmember Shahana Hanif, the chair of the incapacity committee, to take her title off the invoice, the place she’s at present a co-sponsor.
“There are some actually dangerous circumstances for dwelling care employees, however the guidelines round residing shouldn’t come at the price of the security and the well-being of individuals with disabilities,” he mentioned.
Of the roughly 300,000 dwelling care employees in New York Metropolis, about 8 to 10% work 24-hour shifts, in keeping with the town Division of Client and Employee Safety.
At a Feb. 18 Metropolis Council listening to, DCWP exterior affairs director Carlos Ortiz mentioned that the town helps the invoice’s intent however that it has considerations that “prohibiting 24-hour shifts” with out extra Medicaid funding.
Supporters of the invoice have rallied exterior Metropolis Corridor; a number of dwelling care employees went on a week-long starvation strike final month to protest it being stalled.
They ended their starvation strike after an obvious deal to deliver the invoice to a vote — though its future remains to be unsure.
Evan Yankey, advocacy director on the Brooklyn Heart for the Independence of the Disabled, testified that many individuals who obtain 24-hour care are given it “by way of no alternative of their very own” of their managed care plan, and had no say in how their aides are compensated.
“Solely a person can attraction it, however it’s a lengthy course of with a whole lot of steps,” he mentioned.
Beneath the proposed invoice, businesses that also present 24-hour care could be fined.
“Somewhat than face a wonderful, individuals will go with out care, the house care trade will collapse, employees will lose jobs,” Yankey mentioned.
Looming Medicaid Work Necessities
Tuesday’s listening to centered on financial alternatives for the greater than 1 million New Yorkers residing with a incapacity.
Nisha Agarwal, commissioner of the Mayor’s Workplace for Folks with Disabilities, testified about her company’s work in serving to individuals discover – and maintain – jobs.
“The core focus of our work is about jobs for individuals with disabilities – the dignity of their work, the independence that it may present, and the power to construct a life within the metropolis that all of us love,” she mentioned.
Latest information reveals that simply 40% of New Yorkers with disabilities of working age are employed, in comparison with 73% of the general working age inhabitants, she mentioned.
Upcoming federal Medicaid cuts additionally loomed over the company, with uncertainty over who would in the end be exempt from work necessities.
“It’s not clear as a result of there’s no finite rule till June,” Agarwal mentioned, saying she was unclear on how many individuals may very well be affected.
“The individuals are nervous,” she mentioned. “I’m nervous, all people’s nervous.”

